Christmas for many of us is something we dread as much as we look forward to. Crazy weather, family politics and social commitments can be a cumulative drain. Drawing boundaries on your time and energy is the key. End of year introspection: With the year drawing to a close, it is natural to stop and contemplate the year. Most people’s bucket lists don’t include illness, … [Read more...] about Xmas Survival Tips for Spoonies
CIRS (Chronic Inflammatory Response Syndrome)
Remove “Afflicted” Docuseries from Netflix Now
To: Netflix Executives: Ted Sarandos, Lisa Nishimura, Brandon Riegg, and Vernā Myers Remove "Afflicted" Docuseries from Netflix Now Campaign created by Benjamin HsuBorger PETITION NOTE: On September 18th, a group of concerned writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request … [Read more...] about Remove “Afflicted” Docuseries from Netflix Now
Lyme: How a diagnosis can take decades
After two decades, over $70K, and at least 20 medical professionals, finally a diagnosis: Lyme. I believe this is the last missing piece in my health puzzle. I would like to say I have simply been very unlucky and hit a series of dodgy doctors, but the truth is this situation is common. Many people with Lyme Disease often spend years written off as other conditions of … [Read more...] about Lyme: How a diagnosis can take decades
Invisible Illnesses – Fibromyalgia & Chronic Fatigue Syndrome
Most of my acquaintances are unaware I have lived with fibromyalgia and myalgic encephalomyelitis (aka Chronic Fatigue Syndrome/ CFS) for over 20 years. People are often shocked to discover this. "But you look fine!" Exactly. There are no visible signs when I am well enough to be out and about, and when I am too ill, I can’t leave the house, so people don’t see … [Read more...] about Invisible Illnesses – Fibromyalgia & Chronic Fatigue Syndrome
Welcome, Author, Von Danse from @TangledPath
(Note from Labyrinth Press: We're pleased to announce our new Guest Author, Von Danse, who will be sharing her health journey along the road of the diagnosis, CIRS. Having suffered for 20 years with CFS and MCS, Von's recent diagnosis and treatment has helped her find health practices, medicines and life hacks for living with chronic illness. Thank you, Von, for sharing your … [Read more...] about Welcome, Author, Von Danse from @TangledPath