Most of my acquaintances are unaware I have lived with fibromyalgia and myalgic encephalomyelitis (aka Chronic Fatigue Syndrome/ CFS) for over 20 years. People are often shocked to discover this. "But you look fine!" Exactly. There are no visible signs when I am well enough to be out and about, and when I am too ill, I can’t leave the house, so people don’t see … [Read more...] about Invisible Illnesses – Fibromyalgia & Chronic Fatigue Syndrome
Invisible Illness
Kathryn Treat Tribute: #pour1out4MCS Video
Up on my blog, I now have part II of ‘New Beginnings—No Turning Back’, with Author of Allergic to Life: My Battle for Courage, Survival and Hope, Kathryn Treat up on my blog. (It took me a whole year to complete part I and another whole year for part II. And part III is in the works. Life's a struggle. To write and edit you need a functioning brain and body. Ha, and I want to … [Read more...] about Kathryn Treat Tribute: #pour1out4MCS Video
The Visible Edge of an Invisible Trauma
Thilde Jensen's exhibition, 'The Visible Edge of an Invisible Trauma', shown over at The Great Leap Sideways, is a remarkable collection of work. With tremendous photographic skill, her subjects are portrayed with a starkness and honesty that's almost too raw to take in. Perhaps the room coated in foil is as familiar to you as it is to me? Thankfully, nowadays, I live … [Read more...] about The Visible Edge of an Invisible Trauma
MedicAlert ID, Chemical Sensitivity and MCS
This here is my Medicalert bracelet. My new one that is. In 2009, I threw away my old one because I had recovered so much that I did not see being exposed to chemicals as a threat to my health because I wasn't having painful, life impacting symptoms. And I just didn't see the need for it. As soon as my health improved I stopped paying my yearly fee, and stopped … [Read more...] about MedicAlert ID, Chemical Sensitivity and MCS