Health Update, Winter 2016

Hi, my health took a turn for the worse late December last year, 2015. For the first time I had to spend Summer and Autumn indoors. Usually it’s just during winter (Well, since living in a water damaged building (WDB) in 2013) that I feel locked up like a vampire. My ‘Impeding Doom‘ in 2012 was spot on. However, after seeking medical attention elsewhere, still within the medicine, science-based conventional setting, I saw Dr Mark Donohoe who thought immediately I was showing symptoms of CIRS. My diagnosis of it and testing procedure can be found here. I’m still seeing Dr Marky, however, due to the nature and intensity of my symptoms [read brain feels like it’s on fire], I am seeing Mould Specialist Dr Tania Ash who is trained in the Shoemaker Protocol developed by Dr Shoemaker himself.

I’ll start this treatment when I move into my new home: The Build an ‘Eco-Friendly, Allergy-Free House’ Project in 3-6 months time. In the mean time, I am in a mouldy house and have to deal with it. Dr Donohoe prescribed oxygen for my breathing issues and the pain in my head and behind my eyes to help recovery after breathing in fragrances, solvents or petrochemicals [read driving car and visiting people], The good thing about this diagnosis is all the doctors, pathology nurses, MRI staff and the ENT specialist I’ve had to see were most helpful about not using chemicals: Saying you have CIRS does not bring out the same result as saying you have ‘Inhalant Allergies’ aka MCS!

This treatment involves more testing, antibiotics, drugs and pharmaceuticals. There are some natural mould binders I can take but I still have to hit my body with the heavy artillery. The only supplements I am taking are Thorne brand of NAC to assist in my uptake of my homemade Glutathione nasal spray, which you can actually get from a Compounding Pharmacy. As well some Thorne Zinc (I am about to try and change to pumpkin seeds to get my zinc but have had bad luck with nuts and seeds having mould in them.) I bought my first two bottles of Glutathione Nasal spray from here at Custom Medicine for $45. Go read my post on making it if you feel that it’s out of your priceline; but just know this is not medical advice, I was told by a specialist, Dr Grace Ziem, to take Glutathione like this as a treatment for my chemical sensitivities. The NAC boosts this along.

I have ceased the NSP protocol because I was diagnosed with CIRS; and I also had digestion issues that made taking 27 pills a day, just in vitamins, minerals and herbs a burning pain in the esophageal sphincter. I honestly think that taking all those supplements was making me sicker. Even more so, people with mould illness have to be careful with supplements if avoiding products with fermented ingredients like this one:Screen Shot 2016-06-01 at 10.40.56 PM

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I always wondered why vitamin B—besides vitamin B 12 injections—caused mould symptoms.

The next lot of testing ordered by Dr Tania Ash will be published in ‘The Way Out’ as soon as I get the results. Testing has not happened as yet as it’s mighty costly. But it’s going ahead in the next few weeks; therefore, I’ve had to stop all probiotics, which were starting to work. I have a part-time carer, which is good and bad. This just happens to be the person I am building a house with so it’s making the build project even tighter. Yet, if I don’t get mould free premises… I don’t want to think about it.

I spend everyday hooked up to oxygen. Sometimes I use it to do yoga workouts with Yoga teacher Michelle Muench aka Banana Blondie 108. This helps with my stress levels; and with my breathing issues, The benefits of yoga are amazing for me. But more on this later.

I have committed to a whole food vegan lifestyle. Dr Ash has put me on a Low Amylose diet. Standard practice while undergoing this treatment. It means I lose 3 of my 22 safe foods. If, if, I ate animal flesh I’d have a a few more to add to this list but that’s not going to happen. I’ve lost sweet potato, which sucks because sweet potato fries are my favourite food; also carrots and rice. These were staples for me also. Bananas are off the list also but I was having issues with them including reactions that equal the bad LSD trips of my youth!

Oh well, saves me having to contact FreeLee the Banana girl to ask why the hell would anyone react to bananas (I mean, she can eat like, damn, 50 of them)? There is a fungal disease that the banana growers of Australia are struggling with so maybe it has to do with that? Any knowledge shared on this topic of bananas causing severe reactions will be much appreciated in the comments below.

With all that’s going on with testing and the results, it looks like mould may be and may have always been my only health problem. Maybe I don’t have ‘Inhalant Allergies’ aka MCS. Or maybe I have both. I’m not sure, but what I am sure about is this: I WILL make it out of the Labyrinth of chemical sensitivities.

Note: I can’t go anywhere and have been housebound for two years with most of my outbound visits being to doctors or clinics for tests. I’m supposed to go back to Uni February 2017 so the pressure is on to get better. Even if I do online subjects for my first year, I still need my brain and to have at least half the week where I’m not in pain. This is a 24/7 gig at the moment; and it’s not any fun. I’m actually glad my daughter left home.

More

 

The Labyrinth: My CIRS Diagnosis and the Testing that got me there

The Labyrinth: Mould

Build an Eco-Friendly, Allergy-Free House Project: Virtual Eco House Tour

Surviving Mould Illness: The No Amylose Diet

Surviving Mould Illness: Recipes for a No Amylose Diet

Surviving Mould: Brain on Fire

Next

Kitchen series: post 3

Windows series: post 1

‘How to Termite Proof Your Build the Vegan Way’ video

‘Bella’s 5th Birthday’ video

How to use a ‘I Can Breathe’ Bamboo Cotton Mask for Sleeping in due to Woodsmoke Pollution

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

Nebulising Glutathione

This photograph is the vitamin container I bought from iHerb (I absentmindedly bought two, which it, serendipitously, turns out I can now plan out two weeks supplements in a row to save having to spend time each week counting out from all these bottles!); anyhow, it gives you an idea of how many supplements I’m taking each day. I’ve not counted but a wild guess would be twenty-seven or so capsules or tablets. I’ve been working up to doing the Neural Sensitisation Protocol (NSP) for more than a year. Finally, due to my budget allowing it, and my digestive and immune system tolerating it, I’m now practising this completely science-based treatment for people with chemical sensitivities.

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Back in 2009, when I was the Events Organiser for the AESSRA Chemical Sensitivity Seminar ’09, I received a phone call from a gentleman called Terry who, excitingly, shared that his wife had all but completely recovered while doing the NSP. She had similar symptoms within her upper respiratory system, including headaches, sinus and eye symptoms when inhaling chemical vapours, as to what I suffer with. Back then they were all the symptoms I had. (Unlike the past three years, where it’s been food intolerances, digestive issues, fatigue, sore joints and (almost) indescribable sinus pain.) And due to truly believing I’d almost recovered, I thanked Terry for telling me about this new treatment, printed out the documents he sent me, and forgot all about it.

Here is a part of the first page:

“Chemical injury can cause chronic damage to body biochemistry. This involves a biochemical vicious cycle often called “Neural Sensitization” (as discussed below). This cycle can cause reactive airways (airway inflammation), toxic encephalopathy (toxic brain damage), and chronic inflammation to other mucosal surfaces. This is chemically referred to as the nitric oxide/peroxynitrite cycle.1-4

Unless and until this biochemistry is healed naturally, inflammation and ongoing damage will occur. Drugs cannot heal these vicious cycles.

Only science-based treatment with the proper healing substances can help control this cycle, which will otherwise cause ongoing inflammation and further organ damage.”

I’ll upload the rest of the pages as PDFs in the next few days.

The nebulizing of buffered glutathione is one of the treatments I’ve instigated and facilitated as a part of my own wellness plan: this particular one is not under the care of a doctor; however, I didn’t just make it up! It’s a part of Dr Grace Ziem’s Neural Protocol on which she collaborated with Dr Martin Pall. Pall has developed a theory called the NO/ONOO cycle and its relation to oxidative stress, and its relation to conditions such as chemical sensitivity, Fibromyalgia, Chronic Fatigue Syndrome (CFS), heart disease and hypertension which can be found here.

This is the nebuliser that I bought of eBay for $20 plus postage and handling. I’m pretty impressed with its efficiency; it works surprisingly well for something that feels, looks and sounds like a cheap toy. (If you’re sensitive to plastics, I’d use this without the mask attached. It’s the soft squishy type of plastic and smells plasticky even after having been outgassing on my vitamin shelf for over a year. However, I’m fine with most plastics, though.)

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Back in January of this year, I wrote:

When I get sore eyes, it’s beyond painful, and I’ll try anything (almost); and obviously, I am. My nifty little nebuliser came off Ebay… The Glutathione tablets, which I bought from Theranaturals, cost twice more than the machine, itself. I don’t like nebulizing because it irritates the lining of my nose; consequently, I use only half a capsule, trying to build up to a whole capsule. Note: I only practice this technique after a chemical exposure when my upper respiratory system has taken a hit. The rest of the time I take the tablets because it’s easier and far less uncomfortable (People have told me that the body can’t absorb it this way.)

The jury in my mind is still out: we haven’t decided whether these methods, particularly the nebulisation of glutathione, are working or not. You see, when I’m in a room with people wearing a lot of fragrance, even when I’m wearing my hideous mask, my eyes sting, burn and feel as thought there’s fragrance in them; after a while I can also taste it, and my nostrils begin to burn, and that’s when I know I’m about to get really sick: massive throbbing headache, sore neck, and lately, swollen glands. For days. And then there’s the tiredness, which lasts longer now also. So, yeah, I’ll try just about anything. And yeah, I’ve been snorting Glutathione, hardcore. But only when I get sick.

Could it be that the mist helps clear my eyes or it could be the Glutathione?

I want it to be the glutathione. I want my NO/ONOO cycle to be totally interrupted. I want out of The Labyrinth

The jury in my mind have decided:

  • This treatment may help with inflammation of the upper respiratory system
  • It may also build up glutathione levels, thus allowing us ( ‘Us’ meaning you and I, not the jury in my mind (they’ve gone home now)) to handle, and recover from exposures better
  • Seeing I’ve been snorting inhaling a mist of glutathione each day, even when I’ve not been trying to recover from a chemical exposure, I’ve noticed that it no longer irritates my nasal passages, which means I can safely do it as a part of my daily supplement regime
  • The contents of Theranaturals L-Glutathione smells like a cross between sulphur from eggs and puppy farts; but that’s okay because I do believe it’s working! (I’ve blogged before about the type of symptoms (facial, sinus pain (on either side of my nose and my forehead, between and above my eyes), pulsating pain around in and around my eyes sockets that turn to bruises when relief is not found) I experience after breathing in traffic fumes, woodsmoke or fragrance, and how if this is coupled with mould exposure, it hurts to breathe even clean air—let alone an odour (natural or not!); this is still the case, however, my exposures have been far less since October last year, and thankfully, my physical reactions also. Ergo, on the days when I do have that type of pain I only take half a cap of L-Glutathione due to the pain caused when breathing in any odorous substance.)

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Also, readers of my blog have also pointed out to me in the past that taking Glutathione orally is a waste of time because the body can’t absorb it. Until I started hitting the nebuliser hardcore like a kid at a club, I’d always taken my glutathione in tablet form. People could have just told me that it’s just a way of expelling really expensive farts, but they didn’t (Too polite, I guess?!). So if you’re reading this and thinking of, or are already, taking glutathione orally, I’m telling you that the only thing it does is create really expensive farts! Trust me, I’m a wellness blogger and know this to be the truth; that’s why I’m sharing this with you.

I have a list of achievements, or rather improved markers of health, that I’ll share with you soon. I almost worry that if I blog about my health improvements I may jinx it. Kind of the opposite to magical thinking, you know? However, I’m just trying to keep a realistic view on things and do the best I can.

Due to recovering some quality of health back, I’d be ecstatic to share with you that this is the reason. However, I can’t, I refuse to hinge it on this one thing. The recovery is not huge but not being in pain 24/7, rather, only after mould/chemical exposures, does seem huge.

And I have to wonder, I am on my way out of The Labyrinth of Chemical Sensitivities?

More

PubMed: The Treatment of Pulmonary Diseases and Respiratory-Related Conditions with Inhaled (Nebulized or Aerosolized) Glutathione

The Labyrinth: More on Glutathione (including other ways to get it)

The Labyrinth: Augmenting Glutathione

Martin Pall Lecture: The NO/ONOO-Cycle: A New Disease Paradigm

Martin Pall’s Research: Science Based Medicine

Peggy Munson: Myths and Facts About Chemical Sensitivity

All Photography copyright © Michellina van Loder 2015

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

The Labyrinth’s, 2014, Annual Report

 

See The Labyrinth’s Annual Report

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

Information, products and views presented by guest bloggers @The Labyrinth are not necessarily the same as those held by this blog's author, Michellina van Loder. Reviews are my own personal opinions (unless stated otherwise); and satire is used throughout personal posts. Any health topics discussed are not to be taken as medical advice. Seek out medical attention if needed and do your own research; however, you're welcome to use mine as a start.
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