After a diagnosis for CIRS (Chronic Inflammatory Response Syndrome), for which my symptoms are, apparently, classic CIRS mould related. (Not Lyme, CIRS related, which is a controversial diagnosis to have, here in Australia. It’s tad like, in regards to treatment and acceptance from the general medical community, having MCS or EHS (which there are no disease codes for, so in effect they don’t exist–except for the people who live their lives with them everyday. As far as Lyme related CIRS goes, know that I support you (if you are in Australia, you can also find support here at Toxic Mould Support Australia’s Facebook Page and information here at Toxic Mould Support Australia), I have started this ‘Mould’ page so I can post and refer to information relating to my own treatment. I don’t mind putting my personal documents online: they’re my gift to humanity <3
More about CIRS from Toxic Mould Support Australia:
[CIRS] Chronic Inflammatory Response Syndrome acquired following exposure to the interior environment of Water-Damaged Buildings (CIRS-WDB).
Mould illness is the common name for CIRS-WDB. The two terms will be used interchangeably throughout this document. CIRS is a condition caused by biotoxins (chronic neurotoxins) produced by microorganisms such as mould and bacteria such as Borrelia (Lyme). These conditions are also called biotoxin illnesses.
I have just found out that I have the Human leukocyte antigen: HLA-B27, which plays a huge part in all this. I don’t have the knowledge or energy to source this knowledge to explain to you how HLA-B27 meddles in amongst my illness, right now. (Note: I was bitten by a tick in 1988 in the Blue Mountains bush of NSW; however, my symptoms don’t present as Lyme Disease (which, in regards to ‘Lyme’ as a diagnosis, it would be called something else here in Australia because our ticks are different [edit note: clarification needed here] and don’t carry the same bacteria as the ticks that cause Lyme in the US).
Human Leukocyte Antigens (HLAs), are found on the surface of nearly every cell in the human body. They help the immune system tell the difference between body tissue and foreign substances.
The immune response genes are found on chromosome six. Patients could have two alleles, copies of genes (for each gene, one allele is inherited from a person’s father, and the other is inherited from a person’s mother), out of approximately 10 possible, as part of their genotype. Based on Dr. Shoemaker’s data, in normal populations compared to international registries of gene frequencies of HLA DR, we know the frequency of mold illness-susceptible patients approximates 24% of the normally distributed population. Almost a quarter of the normal population is genetically susceptible to chronic mold illness. Three quarters isn’t.
So far, I am on Oxygen Therapy, LDN, Endep, and Celebrex (all taken before bed) and I am doing the Micheal Ash ‘Stewed Apple Treatment as a prebiotic for my dysfunctional gut’ as well as taking probiotics and Magnesium. I stopped all my supplements, except for the Glutathione Nasal Spray, and a new brand of Elemental Magnesium, 300 mgs before bed.
These are my tests that I’m waiting for the results for. This is how I found out about the HLA-B27
These are the tests I gave #blood for today. You know when you’re so sick and you wish the doctors could just work out what’s going on? I’ve struggled with being #sensitive to various (not all) chemicals for 12 years. But I know #mould is the worst exposure I can have. And it’s #insidious yet #abundant in #nature I can’t seem to #escape it. My #immunesystem and #gut might be at fault but is it wrong that I wish for them to find something, anything that explains my illness? #cirs #SEID #mcs
I will be linking and posting the latest research on CIRS to the right of this tab; plus, I will link to my treatments etc. via this page and over at ‘The Way Out‘, where I’ve been documenting my treatments since 2012.
Disclaimer: I am not a doctor, nor a specialist, nor a Wellness blogger. I am a Creative Nonfiction and Fiction writer who practices her craft here at the Labyrinth ~ and finding my way out, and you cannot believe a word I say: Life is art; art is life. And my head hurts.
If you are stressed: breath, do some yoga or get some help.
A photo posted by Michellina (@michellinaoutofthelabyrinth) on