EHS News: A Cell Phone Destroyed My Nervous System and Health

Today, YouTuber, Leesa aka: Aussie Vegan Gardening Yogi, tells us about her experiences with Electro-hypersensitivity (EHS). She also shares some insights into the condition, her treatment by the Australian medical profession so far; and some of the research, diet tips and practices that have helped her. You can find an excellent source of links to research, architects and support groups at the bottom of her clip (on her channel over on YouTube). Thank you for sharing your story, Leesa xx

(Following this video is another YouTube clip where the much esteemed, Dr Willliam Rea, MD from the Environmental Health Centre ~ Dallas,  gives this talk titled ‘Triggering Agents of Electromagnetic Sensitivity’)


Triggering Agents of Electromagnetic Sensitivity

“… a presentation and Q&A by Dr. William Rea, M.D.. Dr. Rea presented his compelling evidence and recommendations for a healthier world at Creating Safe Havens in a Toxic, Electromagnetic World, a conference hosted by the International Institute for Building-Biology & Ecology.”

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

More on Glutathione

For the past year, I’ve been consistently taking Glutathione via capsules called Deluxe Scavengers. Three a day; plus extra in the form of just plain Glutathione if I’m not well (Deluxe Scavengers also contain CO Q 10, Selenium, Vitamin C and Vitamin E, Vitamin A, Selenium, Riboflavin, B6, N-acetyl cysteine, Lemon flavonoids). I’ve blogged about taking it via capsule form, before. (A bit of backtrack) I’ve been gobbling these as if they were lollies off and on for a few years. Back in 2009, I thought I’d recovered and stopped taking them; however, lately, I’ve been hitting them like a kid at a club: bloody hardcore! (Seriously, I reckon that along with the other 22 supplements I take daily (and nightly), that me (and possibly you!) would rattle if shaken.)

IMG_0715

Now, as some of you may be aware, during the last two years, my health (on many levels) has gone from Worse to Mahoosivley Worse. However! From September, 2014—while I was still studying my Diploma (Yep! Tick, done that!) at VU—my health slowly began to pick itself up out of the gutter. First it was 2-3 days without the majority of symptoms, then it was a week, a month, now it’s been since the 6th of October. (Oh, *coincidently, those time periods where without major chemical exposures via inhalation of chemical irritants.)

Today, I’ll be discussing the reasons for taking Glutathione, why people with immune dysfunction need it; the various ways in which to absorb it; what I take, personally; and some alternative ways we can get it; and what it is I plan to try next (and what I’m not about to try).

But first, know this: Glutathione is a major scavenger, is short lived in the body, and it is produced in the body by three precursor amino acids: 1) cysteine (or N-acetyl cysteine (NAC)); 2) glutamic acid (or glutamine); 3) glycine (DMG or betaine HCl).

From Professor Martin Pall’s research: Other elements needed to support the role of Glutathione: a-Lipoic acid—important antioxidant helps regenerate reduced glutathione. Also, D-ribose—increased regeneration of adenine nucleotides (including ATP) after energy metabolism dysfunction and may also help restore reduced glutathione pools. (I’m taking all of the above except for glutamine, glycine and D-Ribose but will be taking these as soon as my budget allows for it. It’s taken a whole year to build up the supplements to be able to do three quarters of this protocol! Only one quarter to go. Want to help? Buy my Book, please.)

Nebulised Glutathione

It can be taken via a nebuliser where it’s inhaled in a nebulised mist. For this purpose, it’s best taken in a buffered tablet form. The term ‘buffered’ just means that the glutathione is diluted with bicarbonate of soda because if the pH is too acidic it can lead to bronchospasm when inhaled.

More from Phoenix Rising:

“People who are subject to asthmatic attacks should not use nebulized glutathione, as it can result in bronchospasm, thought to be caused by the sulfites that form when glutathione is mixed with water.

It’s also very important in nebulizing to use pure, boiled or sterile water, and a clean nebulizer in order to prevent introducing infections or respirable particulates into the lungs. Because of these issues, nebulizing is best done under the supervision of a doctor or a respiratory therapist.”

The nebulizing of buffered glutathione is one of the treatments I’ve instigated and facilitated as a part of my own wellness plan: this particular one is not under the care of a doctor; however, I didn’t just make it up, trust me! It’s a part of Dr Grace Ziem’s Neural Sensitization Protocol on which she collaborated with Dr Martin Pall. Pall has developed a theory called the NO/ONOO cycle and its relation to oxidative stress, which can be found here. (I’ll post some more on what else I’ve been doing during 2014—2015 as a part of this protocol ASAP.)

The reasons for the success of Nebulized Glutathione are discussed in the study, ‘The Treatment of Pulmonary Diseases and Respiratory-Related Conditions with Inhaled (Nebulized or Aerosolized) Glutathione‘ on NCBI (The National Center for Biotechnology Information):

“Reasons for inhaled GSH’s effectiveness include its role as a potent antioxidant, and possibly improved oxygenation and host defenses. Theoretical uses of this treatment include Farmer’s lung, pre- and postexercise, multiple chemical sensitivity disorder and cigarette smoking. GSH inhalation should not be used as a treatment for primary lung cancer. Testing for sulfites in the urine is recommended prior to GSH inhalation. Minor side effects such as transient coughing and an unpleasant odor are common with this treatment. Major side effects such as bronchoconstriction have only occurred among asthma patients presumed to be sulfite-sensitive. The potential applications of inhaled GSH are numerous when one considers just how many pulmonary diseases and respiratory-related conditions are affected by deficient antioxidant status or an over production of oxidants, poor oxygenation and/or impaired host defenses.”

So yeah, I’ve been snorting Glutathione… hardcore

freeimages.co.uk medical images
To nebulize (Note: Underlines are not links; they’re just for emphasis!):

“a) Use nebulizer brand per Key Pharmacy 800-878-1322. Use water (or saline) alone first time. Nebulize at least 3-4 times daily, more often with exposure, when sicker or to get better faster.

b) Add 2 ml (droppers) of water to nebulizer first, then add 1 drop concentrated specialized vitamin B12 (methylcobalamine) in nebulizer. Never put B12 in first. For 5 mg strength you may need to dilute with 5-10 drops or more of water in extra small brown bottle. Gradually increase to 5 mg full strength.

c) If you have Rx for nebulized glutathione, add 2 drops glutathione to 2 ml water in nebulizer. If any irritation, dilute to below irritation level. Increase concentration gradually, staying below irritation level. If okay increase glutathione add 2 dropsthen 4, 6, 8, etc. until you can use glutathione without water (can use with compounded 5mg/drop B12). If you have irritation (coughing, etc.) reduce glutathione dose irritation level until more healing, then slowly increase again. Never put B12 in first as it will clog the filter, add to water/glutathione.

d) When you can use glutathione 10 mg/ml, gradually increase concentration with pharmacy, e.g. 40mg/ml, 80mg/ml.

If you have irritation after nebulizing, discontinue. Then for mild symptoms dilute further, and go up more gradually. Worse inflammation needs more dilute amounts or injectable forms.”

I started doing this because of painful symptoms experienced in and around my eyes. When I breathe in certain volatile chemicals such as fragrance, solvents and vehicle fumes, my eyes burn, sting and get sore for days. They feel—and sometimes look—bruised. They dry out, which makes it uncomfortable to be in heated rooms, hot cars, and for sleeping at night. The only thing that helps bring relief is avoidance of chemical inhalants and the use of Bion Tears when the former is not possible. (Once I have an exposure, developing chronic dry eyes, I need to cut back on my outings. My eyes are like a parched river bed, desperately needing respite from the current climate. Those, and the facial pains, are my biggest warnings.)

Irritated, dry eyes can be a symptom of upper respiratory system irritation. Burning eyes caused from inhaling fragrance chemicals, vehicle exhaust and other inhalants can be symptomatic of chemical sensitivity. And fragrance ingredients are known irritants among renowned Allergists, Immunologists and Doctors of Environmental Medicine!

freeimages.co.uk medical images

So for me, when I get sore eyes, it’s beyond painful, and I’ll try anything (almost); and obviously, I am. My nifty little nebuliser came off Ebay, of all places. It cost around $20, was made in China and looks and feels like a cheap plastic toy (hard plastic!). Surprisingly, it works. The Glutathione tablets, which I bought from Theranaturals, cost twice more than the machine, itself. I don’t like nebulising because it irritates the lining of my nose; consequently, I use only half a capsule, trying to build up to a whole capsule. Note: I only practice this technique after a chemical exposure when my upper respiratory system has taken a hit. The rest of the time I take the tablets because it’s easier and far less uncomfortable (People have told me that the body can’t absorb it this way.)

The jury in my mind is still out: we haven’t decided whether these methods, particularly the nebulisation of glutathione, are working or not. You see, when I’m in a room with people wearing a lot of fragrance, even when I’m wearing my hideous mask, my eyes sting, burn and feel as thought there’s fragrance in them; after a while I can also taste it, and my nostrils begin to burn, and that’s when I know I’m about to get really sick: massive throbbing headache, sore neck, and lately, swollen glands. For days. And then there’s the tiredness, which lasts longer now also. So, yeah, I’ll try just about anything. And yeah, I’ve been snorting Glutathione, hardcore. But only when I get sick.

Could it be that the mist helps clear my eyes or it could be the Glutathione?

I want it to be the glutathione. I want my NO/ONOO cycle to be totally interrupted. I want out of The Labyrinth

More on Nebulisers

Omron make a nebuliser recommended for use with Buffered Glutathione. However, I’m not sure the plastic tubing would be suitable for use by some chemically sensitive people. Omron NE-C801 Lightweight or NE-C30 Compact Portable or NE-U22V Ultra Compact Portable. As I’ve mentioned, mine came of Ebay: Ultrasonic Nebuliser. I wasn’t about to spend hundreds on something that may or may not work—as I have in the past on many things just trying to nip this illness in the ass!

Uses: lungs, brain, eyes, liver, skin, joint, detox and methylation, antioxidant, COPD, CFS, CF, free radical scavenger, hemoglobin

You can see my Ultrasonic Nebuliser, here

More Natural Ways We Can Increase Glutathione:

Eat Turmeric 

If you can tolerate turmeric, and can’t get out to access medical care, this just may be the best way for you to increase glutathione. Sometimes, it’s just a matter of doing what we can…

:)

Possibly the best and most natural way to increase glutathione is to eat turmeric. I use fresh (organic when I can get it) turmeric, lightly sautéed in coconut oil, which I add to sauces, soups, steamed veggies. Or I cook up batches, slurping it into small glass bowls to freeze and use later (I use Glasslock because they’re PBA free and the lids don’t reek of petrochemicals (like the lids on brands such as Pyrex (which are not PBA free), whose fumes irritated my airways so much, I threw them out!)). The curcumin in turmeric has been shown to stimulate glutathione production (and it can help with sore joints [think Fibromyalgia and Arthritis type symptoms]; and, in fact, due to the results shown in recent peer-reviewed studies, even one of my specialists recently suggested I try to eat more of it (for the immune system benefits! And sore joints, I was experiencing, last year…). So, yeah, I put it in everything that gets cooked around here: just about everything we eat is a lovely mustardy, tumericy yellow colour!

Tumeric Sauce

Here is my recipe for Tumeric Sauce (if you’ve not heard of this wild, crazy sauce as yet, that’s because I just created it!).

Gather This:

Tumeric root (or dried tumeric powder will do. Avoid mould effected: shrivelled and wrinkly batches)

1 TBSPN Coconut oil (or other suitable oil)

Juice of 1 Lemon

Half an avocado

Sea salt

Fresh herbs if you like (I use parsley and thyme)

Do This:

Mix all ingredients in a blender. Then saute lightly for 10 mins while stirring.

Curcumin is also available in tablet and capsule form. I’m hooked on the brand Thorne for most of my supplements. I’ve not had any digestive issues with any of their products to date; although, I’ve not tried their curcumin because I’m sure I’m getting enough glutathione as it is. (Note: some vets even recommend these be given to pets who suffer with sore joints. :) )

Intravenous Glutathione

Okay, now for the heavy stuff:

IV vitamin and mineral supplements can consist of glutathione, magnesium and B12. I’ve heard of people with chemical sensitivity and/or chronic fatigue having this done. (I do shots of B12; more on that another time.) With the resources and practice, it can be done at home. Kathryn Treat used to do this at home and swore that it helped assist her in recovery (She made remarkable progress; I’m so glad she left us with the gift of her book! I seriously miss her.) She’s documented the process in the book, Allergic to Life.

Doctor List One: An Australian clinic has physicians who offer IV treatments: The NIIM clinic. It’s going to cost money, though; but at least you’ll be comfortable (ask them to kindly not to emit essential oils in the building on the day of your treatment. (I’ve not been there for 2 years, but they did do this for me when I asked. Also, I waited outside until I was called, having gave my cellphone number to reception.)):

“NIIM emphasises a comfortable and welcoming environment in the IV and Chelation Clinic to create a tranquil and enjoyable experience. Patients are provided with plush seating, audio and visual entertainment, reading material, wi-fi internet access, and refreshments.”

Doctor List Two: And, possibly more convenient for you, there are other doctors who do this scattered all over Australia. You can find them on ACNEM’s full list, here. Click here for ACT, NSW, NT, QLD, SA, TAS, VIC, WA, New Zealand, and South East Asia

So yeah, the IV treatment (from a doctor on the second list) is what I’ll try next (if my health doesn’t get better over the next year or so, but of course it will!); however, first I have a house to start building. Want to help me start? Buy my Book, please. More on the build coming up—I promise!

:)

But Wait, There’s More

And this is what I’m not going to be doing to increase Glutathione:  (I don’t want to use any search terms that Google may add to it’s algorithmic listings that may or may not magnetise perverts towards the sanctuary of the-labyrinth, so, click this, here, clickbait for more.) There’s no research that I can find that supports or warrants further investigation of this particular method (although, Sherry Rogers, a nutritionist, wrote about it in chapter II of her book, Detoxify or Die and in Wellness Against All Odds.  She has written extensively about it; and you can read more about this scientifically outdated (in 2002 she wrote this) method, here. For more about this, go here. You can watch a YouTube clip about it, here. (Ergo, if you are more interested in detoxing as opposed to following the Pall/Ziem Protocol, then go here.).)

And to finish off, in the words of Sherry Rogers:

“You and your doctor have been screwed into believing every symptom is a deficiency of some drug or surgery. You’ve been led to believe you have no control, when in truth you’re the one who must take control. Unfortunately, the modus operandi in medicine is to find a drug to turn off the damaged part that is producing symptoms.”
― Sherry A. RogersDetoxify or Die

Drug or supplement, if it switches it off, who wouldn’t want to take it?

Further Research on Nebulizng and Glutathione

PubMed: The Treatment of Pulmonary Diseases and Respiratory-Related Conditions with Inhaled (Nebulized or Aerosolized) Glutathione

Evidenced-Based Complementary and Alternative Medicine: Neural Sensitisation: Three Vicious Cycles

The Environmental Illness Resource: What is the best way to raise Glutathione levels?

Brands I use

Deluxe Scavengers from IHerb (they’ve changed the ingredients so this same one is not available right now)

Glutathione, Thorne Brand from iHerb

Buffered Glutathione from Theranaturals

More from The Labyrinth

The Labyrinth: Perfume and Histamine

The Labyrinth: Nebulising Glutathione

Further Research on Chemicals and Consequences of Inhalant Irritants

PubMed: Citral a fragrance allergen and irritant

PubMed: Irritative effects of fumes and aerosols of bitumen on the airways: results of a cross-shift study

J Elberling: A twin study of perfume-related respiratory symptoms

J Elberling: Increased release of histamine in patients with respiratory symptoms related to perfume

The Scientific Committee On Cosmetic Products And Non-Food Products Intended For Consumers. Concerning: Fragrance Chemicals In Detergents And Other Household Products

PubMed: Review of the Upper Airway, Including Olfaction, as Mediator of Symptoms (Note: this could be why Gupta works on those areas for a few people? Input Welcome! Feel free to get on the SoapBox, below… )

And, furthermore; and just so you know :

“Unfortunately, scientists have NOT determined precisely how inhaling perfume chemicals can cause respiratory distress (Eberling 2004; Schnuch 2010) or how exposures to traces of a fragrance can trigger contact allergy (EC 1999). They are trying to establish whether reactions are triggered by scent chemicals themselves (Lastbom 2003), their oxidation products (Christensson 2009) or other ingredients such as phthalates, which are strongly associated with asthma and other reactive airway symptoms (Bornehag 2010; Mendel 2007).”

Read More… Not So Sexy: The Health Risks in Secret Chemicals in Fragrance

All Photography copyright © Michellina van Loder 2015. Except for Nose, and Eye photos sourced from UK.freeimages.com

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

Information, products and views presented by guest bloggers @The Labyrinth are not necessarily the same as those held by this blog's author, Michellina van Loder. Reviews are my own personal opinions (unless stated otherwise); and satire is used throughout personal posts. Any health topics discussed are not to be taken as medical advice. Seek out medical attention if needed and do your own research; however, you're welcome to use mine as a start.
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