The Way Out: Supps, More Testing and Diagnostic Proof of CIRS (Mould Illness)

The potential harmful effects of exposure to molds in inhabited buildings were recognized in early Biblical times. In the Old Testament ~ King James Version, Oxford 1888 Edition, Chapter XIV: Verses through to 34 to 37

Dr Mark Donohoe

I recently saw one of the most famous MCS Doctors in Australia, Dr Mark Donohoe, expecting to get a diagnosis of MCS. But, low and behold, to my surprise I was given one of CIRS almost on the spot, instead. Also of note about this doctor, he’s very ‘conventional-medicine like’ when it comes to my diagnosis and treatments: Plenty of pharmaceuticals, the NeuroQuant MRI plus research to back it all up was provided. On the flip side he lived up to the ACNEM reputation and has me on such high does of probiotics, that, thankfully, are working out quite well and I’m very grateful for.

However, I had to stop the probiotics for 4 weeks before this last Bioscreen test, which caused all my digestive symptoms to come back. The good thing about that painful situation is that it proves the probiotics are working. I can even get away with Kettle Salt and Vinegar chips; I find this amazing! Gluten containing foods, no.

One test I’m waiting on is the non Celiac gluten sensitivity gene test, HLA DRB1 and HLA-DQ (“coeliac”) genotyping, which goes with the CIRS. I used to be able to eat gluten until 2012 when I live in 1st WDB.

I already know I have the HLA-DQA2 in my MTHFR.net results (from 23andMe) and two other HLAs but in case you haven’t realised it, you need a science degree to work this stuff out. The following makes a great read if you feel like getting off to sleep. HLA DQ is not necessarily good if you have breast implants and that gene. Makes me wonder if CIRS. Mould illness, can’t impact on those. I also have HLA B27, also not good with breast implants for those with an auto-immune disease, which I don’t have.

Ankylosing spondylitis is another auto-immune disease related to HLA-B27. 9 out of 10 people who have it have HLA-B27, which still doesn’t mean you’ll get that just because you have that gene, however, related family have a much higher likelihood of developing ankylosing spondylitis. More from Breast Implant Support.com:

“Some notable autoimmune diseases that have a strong association with HLA antigens include Hashimoto’s thyroiditis (an autoimmune disorder involving underproduction by the thyroid gland) associated with HLA-DR5; Graves’ disease (an autoimmune disorder associated with overproduction by the thyroid gland), associated with HLA-B8 and Dw3; and hereditary hemochromatosis (excess iron stores), associated with HLA-A3, B7, and B14.”

There goes the booby operation I was getting done next week :)

Plus I have nasal swab tests in for MaCRONS, and a sinus cavity test for MaCRONS to perform (myself) on Monday. Hope to film that and share it here, providing all goes well. Doing this test: a swab on a wire is placed into my sinus cavity for more, deeper samples.

Other Testing that’s Now In

  • FBE + CRP

General pathology

  • Lyme serology and Western Blot if positive
  • Babesia on blood film
  • Bartonella serology

Infection

  • Erlichia and Rickettsia serology and PCR
  • Anaplasma serology

Hormones

  • VIP (vasoactive intestinal polypeptide)
  • This may only be available from certain specialist pathologists, such as Nutripath in Melbourne
  • AM Cortisol + ACTH
  • Aldosterone

Waiting excitedly to get these back!

Also doing the prebiotics based of veggies each day.

Plus, still going strong the Micheal Ash protocol, more prebiotics, where green apples are cooked up (I skip the cinnamon) and raisins are supposed to be added; I’ve finally been able to find a brand with no or little yeast on them (either that or I tolerate them now); this makes them non-reactive once cooked. No prickling rashes on my face after eating them. For the second part I have to add in blueberries and almonds.

This will get my gut ready for the onslaught of medicines needed to rid my body of CIRS, pray.

I’m still doing the low-amylose diet, however, until I’m out of a mouldy house, 2, sometimes 3 of the foods on the list are in my diet: I eat a vegan whole foods diet and rice and sweet potato have been sustaining me for a while. It just wasn’t doable hence the binging on chips!

Besides zinc and b12 shots, I take only one supplement from Dr. Donohoe: NAC (This supports the Glutathione Nasal spray I’ve been making myself–at $45 a month, it’s just too much to pay out (it’s just buffered glutathione mixed with saline water in a sterilised Fess bottle).

Although, I’m thinking of doing liposomal vitamin C in high doses once I can get the ingredients together.

DSC04125 copy

My original source came from Custom Medicine at $45 a pop

“Do I have MCS?”

A question I was asking myself a few months back when it was first suggested, then later confirmed via the MRI that I have CIRS. Obviously, in Australia, I don’t have MCS unless I am using DDLS (Disability Discrimination Legal Service), which, at times, seems like a never ending pastime.

I don’t have MCS unless I am reminding people of my right to Access to Goods and Services under the Australian Human Rights act (Often this is to a pathology laboratory, or medical service of some kind: Allopathic and natural.) None of my medical documentation states that I have MCS.

I don’t use the term MCS at Victoria University when accessing Victoria University Disability Services (VUDS); nor does the label appear on my documentation of the awesome ‘Access Plan’ that gets drawn up by VUDS.

I don’t call it that with my General Practitioner; yet, I’ve had one ENT specialist say that people who are sensitive to chemicals and believe they have MCS actually have a Psychogenic Illness—like that myth needs to be perpetuated by the Australian medical community (And, I didn’t even mention MCS because my medical documentation and I don’t say it? Gee, it will be great if I actually do only have CIRS cause I’ll recover and can get on with my life, away from such nonsense in a very small-minded part of mainstream medicine, in Australia (while remaining an MCS advocate, of course).

All, apart from the new documents that say CIRS, most of my medical documentation says I have “Inhalant Allergies to chemicals including mould, fragrance, diesel, car exhaust, hydrocarbons, terpenes and woodsmoke”, at levels not normally associated with illness within the general population. However, recently, I have been living in a water damaged building (WDB) and have suffered headaches, breathing pain and lethargy that have left me bedridden. Because my treating specialist has been away, I went for help the only place I could find it (besides my GP who could only give me pharmaceuticals), Dr. Mark Donohoe, who said my symptoms where indicative of CIRS. I’m so glad he was right.

So, I won’t know if I have MCS, sorry, Inhalant Allergies, until after the treatment, which just happens to be the Shoemaker protocol (links at the end). What I do know, however, and it cannot be disputed within the medical and science community is that solvents cross the blood brain barrier (BBB), making it easier for the mould to impact my brain, hence the swelling areas.

More on this from this group teaching session on CIRS:

“CIRS Diagnosis – Recent Developments : NeuroQuant  Inflammation can affect blood brain barrier  NeuroQuant takes particular images from non- contrast brain MRI and measures volumes of 11 different paired structures in the brain  Effects seen on NeuroQuant can point to mole (aka WDB) and/or Lyme effects on specific brain tissue  Interstitial edema (swelling) in some areas  Atrophy (shrinking) of other areas”

My headaches are called: “brain swelling/ microvascular cerebral edema in CIRS“. They often last for two weeks. It used to be a 3-4 day thing after going to uni or a doctor’s appointment. Always caused by a long car trip and/or busy traffic. Now, I know my car has mould because I rarely go in there, yet when I do, mildew is all I can smell but it’s the petrol that hits me. Never did I think mould could be the precursor to that. This car is also from the last WDB I lived in. Now, a car trip can have me laid up for two weeks. Beyond comprehension when I’m going through that pain.

And the mould highest of the water damaged building (WDB) moulds in my rental right now: Wallemia, which scored a 30. I don’t have permission as yet from Mould Lab to share my report so won’t be including this for now.

After the MRI with a NeuroQuant assessment that had to be sent to the the US at Cortech Labs, which you can see on this page, the numbers had to be punched in to get the diagnostic cause: Mould, Lyme-like Illness (in Australia) and PTSD showed up on my brain via atrophy and edema (shrinkage and swelling).

Dr. Turtle in Mosmon, NSW, was kind enough to do this as I could not access a doctor’s surgery where they did this type of thing at that time due to the nature of my chemical sensitivities. (I’ve since found out where you can go and who you can see to access CIRS trained doctors in Australia. However, I feel blessed with the doctors I have as they are familiar with the Shoemaker Protocol and CIRS testing and the challenges faced by people with MCS or MCS-like symptoms.)

Below is the documentation that proves my diagnosis. As a blogger and writer sharing my story, I feel the need to share as proof and as public education for a few reasons:

The least: In light of the Belle Gibson/Irresponsible-non-fact-checking media scandal, which goes to show that not all health stories shared on the internet are factual, ergo, I can prove mine is. (For those who don’t know, Gibson is/was an Australian App designer, a one-time author (of a cookbook), and someone who faked her brain cancer for reasons unknown; meanwhile, the media ran with the judicious story that eating vegetables cured her of cancer. So simplistic; so stupid. Completely. Lol, not really lol but we all love a good story right? Even at the expense of other cancer patients’ health and lives? Surely not!)

The most: To help others who are struggling with complex symptoms and unable to find help

And to share my own story about my travels out of the Labyrinth of Chemical Sensitivities and now, CIRS as way of giving back to all who help me, even in the smallest way.

And, to prove I have MCS! Just kidding… (Hey, Australian Government: Hurry up with some support from the findings of the 2010 review into MCS, you did, like 7 years ago. People are suffering, like, right now… You can’t just publish a fact sheet stating that Australian people have MCS while those same people who have MCS and other illness related to chemical illness (that have actual disease codes!) are unable to access care due to fragrances and a lack of education among the community and medical community, some of whom even laugh in our faces… Case in point: Look at me; I’ve been suffering with medically-tested for and medically-proven inhalant allergies to chemicals for 14 years. 10 of those years were productive enough to leave the house and go to Uni. The last year or so, I’ve been completely housebound. Luckily, I’ve had great medical care all the way through; and only ever saw 2 doctors who proved to be misguided in their opinions, they bandied ‘Psychogenic, and Depressive theories’  about without even checking their facts or any patient documentation.

While on that topic, another fantastic specialist said to me: “You just can’t make that claim about a collective group of people; it could be made on a case by case basis only. I’m already 12-cat-lady crazy so this claim means nothing to me! It really bothers me that someone suffering could be told this, to their detriment!

This is my latest diagnostic documentation:

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Whether I have CIRS only, or MCS and CIRS is besides the point: I am sensitive to chemicals. I have a part-time carer. I need access to medical care. I want to go back to school. And there are no commonly known guidelines nor education around this issue when it comes to public education, or medical for that matter, which means we are left like sitting ducks but instead of being shot at we are often excluded from life, safe homes and even Government assistance, in many cases unless we do the educating ourselves. In my case, I’ve been lucky enough to attend school as some of you know. Other elements can be really crappy though:

Family members often think it’s about the ‘smell’ of chemicals, rather than the chemical-irritants proven to be allergenic to some, that is the problem here. I believe in taking showers but using a mass amount of chemicals to ‘smell clean’ baffles me.

And, as far as MCS goes, myths are perpetuated, which leads to assisting anti-vaxers and purveyors of snake-oil like ‘cures’ to use us as examples; while some of us cannot even get vaccinated and cannot afford the snake oil.

You, Australian Government, leave us vulnerable at every turn, while the unscrupulous try to sell us this cure and that cure.

People in the science community argue about us like we don’t exist.

You also leave us vulnerable to certain behaviours of ‘doctors’ and bloggers to make fun of us and our doctors; yet, you have the MCS fact sheet for us. For what? So members of my community can suffer, sometimes even reaching the point of suicide? No safe housing options. People living in their cars, on balconies and in their bathrooms. Vulnerable. Disabled. No policies in place to protect us.

While the same myths are regurgitated and vomited into the blogosphere and the collective minds of family, friends and people who have the power to help us. Myths that cause genuine harm:

The Australian Government leave patients sensitive to chemicals open to ridicule on the internet and in real life

By not recognising MCS, the Australian Government leave patients sensitive to chemicals open to ridicule on the internet and in real life

Kozlovich then goes on to list the same set of links used since 1980 to debunk an illness many people experience:

Multiple Chemical Sensitivity: A Spurious Diagnosis
Multiple Chemical Sensitivity Syndrome, American Family Physician, September 1, 1998
Smearing Cosmetics
Senseless Scent Patrol
Scents and Senselessness 
Sick of It All 
Nocebo Effect: Think Sick and You’ll Be Sick
NEW SYNDROME? OR MORE SILLINESS?

Yawn…

But the people who are sick from MCS, they don’t matter do they? Do they NICNAS? Dear, Australian Government? Well, we do have Tammy Franks from The Greens on our side. She has our back!

'Science Based Medicine' blog: People who make fun of us

The above is from “‘Science” Based Medicine‘ blog: More people who make fun of us

Maybe I don’t have MCS or maybe I do; but however this turns out for me I will always be an MCS (and related conditions) advocate and news service, here at The Labyrinth and finding our way out! How about you? Do you advocate for people with MCS, CIRS or other illness related to chemical sensitivity as a symptom?

More on Getting Help for CIRS

NeuroQuant Cortech Labs

Toxic Mould Support Australia

Surviving Mould Down Under

Surviving Mould Website

Access CIRS trained doctors in Australia

Getting Help for MCS

Human Rights: Access to Goods and Services

AESSRA

ANRES

Amelia Hill EI/MCS Resources and Support Page

Australian Doctor’s List

Interviews, and MaCRONS Testing

Self Hacked: CIRS

Dr. Ritchie Shoemaker: Pioneer in CIRS, Mold & Biotoxins; with Guest Host Dana Howell

Test for MaCRONS (Biotoxins living in Sinus and Nasal Cavity)

Media! and Blogger Scandal in Australia

One side: Mad as Belle: the media’s lost accountability

Other side: Belle Gibson, Amanda Rootsey, Jess Ainscough and others fight cancer with ‘wellness’

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

4 Disability Assistive Devices I need to Survive

My top 4 Assistive Devices for Mould Illness (CIRS) and Medical Conditions with Chemical Sensitivity as a Symptom!

(Note this page has a formatting issue that has removed my paragraph breaks so it’s in the naughty chair until I can fix it! This always happens when I embed Instagram posts. If you have a solution or know why this happens please leave a comment below or call me.)

Anybody who thinks that people who have medical conditions where their health is impacted on via chemical-irritants are living in the wrong era have it mixed up: living with modern technology makes our lives easier. The mythology that exists that we just can’t cope with the modern world and chemicals—which lets face it are everywhere and in everything—is exactly that: a myth. H20 is a chemical. We need chemicals, we need electricity for our assertive devices and we need devices that can make life living with a chronic illness, disease or other medical condition a whole lot easier. If someone has environmental illness it doesn’t mean they belong in the 1900s’ with all natural pure stuff, in a hut living a paleo lifestyle. No, it means that we need chemical-based extensibly helpful assistive devices like Air Purifiers, Face masks, Oxygen masks and tanks and, my personal favourite: a dehumidifier! Here is a listicle of my top 4!:

My Oxygen Tanks from BOC Gases

These make such a difference to my life that I cannot imagine living without them—until I get better and don’t need them, that is. I use 1 large tank and 1 medium size tank approximately every ten days. At the moment my carer pays for them, but will be applying for Government assistance soon. The biggest difference they make are when it’s smokey outside yet the smoke makes it’s way inside and into my lungs. For the last 14 years I’ve suffered upper respiratory symptoms from inhalation of woodsmoke coming from neighbours’ chimneys. Luckily for me, I live in a holiday area so it’s only terribly bad on the weekends when the terrorists holiday makers come up.

They’re also useful for when someone nearby runs diesel trucks, mows the lawn using old lawnmowers that spew out two-stroke fuel, or run their boat motors after a day of fishing while they clean it; petrochemicals knock me out for the rest of the day at the moment.

The oxygen therapy was prescribed by my doctor to be used 2 times a day for 20 minutes and also for 20 minutes after an exposure to chemical-irritants and natural substances that cause pain, long-lasting symptoms and further sensitisation—as is the case with mould exposure. Actually, I’ve been using oxygen whenever I write and also while on the phone and sometimes even while making a video because the oxygen allows my brain to work as normal. The last 6 months have seen a huge decline in cognitive skills, short-term memory and emotional regulation in times of chemical exposure. Stress just makes it ten-fold, and the anticipation of all of these can cause anxiety, which I’ve not experienced before at such a high level. 

Oxygen therapy has helped this CIRS symptom the most: It’s like feeling completely lost in an unfamiliar place even though you know you are somewhere where you’ve been a 1000 times before. If this place is on a freeway, it’s terribly frightening.

  xxxI can empathise greatly with those who suffer Alzheimers with dementia symptoms, which, over a 6 week period, is what I thought was happening to me before I saw Dr Mark Donohoe and had the Neuroquant MRI, which allowed the diagnosis of CIRS (Mould Illness) to come about so quickly. Hence being put on oxygen. (It’s also useful for doing yoga deep breathing exercises.

On some days, I can get through a 40-45 minute session of yoga with Banana Blondie 108 She has some wonderful chest opening exercises in her ‘Heart Chakra’ Yoga series. And for $10 US a month, it’s great value. You can find these classes at Thriving Plant Based There is free yoga available also. I have a post coming up on the value of the Chakra series with my lovely, gifted virtual yoga teacher!)


My AusClimate Dehumidifier

I’ve blogged before about my AusClimate dehumidifier in the post titled, This One Sure Thing: My AusClimate Dehumidifier, however, even more so than my next device, an air-filter/purifier, due to the breathing issues I have with indoor and outdoor moulds, keeping the relative humidity low is a must for comfortable breathing. There is no point having oxygen to plug into my airways if the air is full of outdoor moulds; or moulds from the water damaged ceiling in the room sealed off from my main living area. When I moved in I was told by my real estate rentals manager that the ceiling had been fixed as it was something I was concerned about when I saw the tell tale water stains on the ceiling. I believed my estate agent, and I still do.

However, a year or so after moving in it began leaking after a terrible storm. The owners of the property and the estate agent sent out someone to replace the roof; but even before that happened I was on the forum of AESSRA asking about dehumidifiers. I didn’t like what I heard so I looked on the internet under the keywords ‘mould’, ‘dehumidifiers’ and ‘mould remediation’; and that was how I came to find AusClimate. Not only was I given excellent advice on how to use my machine, like:

  • running it for 3 whole days to remove all the water from the indoor environment;
  • keep the dust mite count down (the perfect food for mould!) by vacuuming regularly; and using micro cloths to pick up dust without spreading it;
  • advice on how to keep my home mould free (so long as the water leaks had been fixed—and, with the new roof the owners of the rental put over my head, they were, for the time being, until now with this new 3rd leak. Stain over stain on the old chipboard/particle board ceiling.
  • this machine has saved my lungs a huge amount of pain because not only has the roof leaked again (which I will be blogging about in another post where I compare the AusClimate dehumidifier to the Delonghi Dehumidifier, which I have running 24/7 in the water damaged room: it’s that inefficient. And my ERMI results.) but I’ve had to put up with even more damp air
  • at least I have my AusClimate 35 litre machine to keep my living space dry, therefore, hopefully, no mould can grow on my possessions? I don’t know. If you have the answer to this, please leave it in the comments below…

But whenever it rains outside, I whack on the dehumidifier! This stops my lower lungs from hurting from the dampness in the air if I didn’t have it running. (I don’t know why my lower lungs hurt when I breathe in damp, cold or smokey air but my GP and Dr Donohoe are looking into it via an x-ray and Spirometry test, which I’m doing next week along with my tests for the Biotoxins and other bacteria shown up in my MRI.)

My living area is around 45 square metres, making up the lounge, dining room and kitchen (that’s where my bedroom, office, gym and dining area are). I never run it for longer than 5-6 hours at a time; however, once a month I run it for a whole day or night when I am out of the house. It’s so powerful that if I leave it on for too long, I can feel my eyes start to dry out, which is just a sign to turn it off. It’s winter here in Melbourne and not only do I need to suck up the cold damp air with the Dehumidifiers, I need to dry my washing inside because if I leave it outside in the rain, it gets mildewy and even worse, reeks of the chemical-irritants in woodsmoke. I have made a video about using this machine to dry my clothes, which you can watch below. 

(If you cannot watch it, basically it just shows how I hang my clothing and cleaning cloths (dusters) on a large portable clothes hanger overnight with the AusClimate running. By morning my clothing is clean, fresh and dry ready to be put away.)

xxx I’ve also made a video on how I clean it once a month. Ergo, I intend to make a video on how we clean the whole unit, fully, once or twice a year. I have heard stories of other units going mouldy—I mean they do suck up water and dust—so do need to be maintained just like any other household device. Watch the video below, and then we shall move onto clean air!

[insert video 2: How to thoroughly clean your Dehumidifier]
[Insert Video 3 on how to stop would smoke coming inside while taking a shower]

My 3M Filter Mask and Cotton Scarf

I’ve blogged about it and made a video about how useful the 3M mask has been to me over the years. 14 to be exact! Although, it used to give me a lot of freedom, it’s not longer useful unless it’s for fleeting exposures like going to the letterbox or stepping outside for a bit. When I go out I now use it with the oxygen nasal tubes underneath and it works like a charm. Amazingly so. I buy my masks from AESSRA (The Allergy and Environmental Sensitivity, Support and Research Association)


My InovaAir Purifier (Air Filter)

In 2004 I rented an Austin Air purifier to see if it worked for me. I had it two weeks and realised I needed one; therefore, I took out a small bank loan, immediately buying one. The InovaAir Purifier is almost the same design just more modern and sleek looking. It’s on wheels so can me moved about; has the reputation of cleaning the air of a small to decent size room within 15-20 minutes so long as its clean to begin with. For example: your house has clean air in it after airing it throughout a fresh sunny day, evening comes and you forget to close up the house, allowing woodsmoke from a neighbour’s backyard fire pit or woodfire chimney to get inside your house. The air is no longer comfortable to breathe on a physical level, naturally, you close up your house, turning on your InnovaAir or Austin Air Purifier onto high. Within 15 minutes your room is back to being clean again. This may not take away the inflammation or headache or asthma caused but it will stop any more smoke from impacting on your health.

(There are some other tips and tricks I have ready in another draft post that I’ll try and post before winter rudely sets in but for now, know that I go through a lot of painters’ masking tape (it’s less sticky and doesn’t pull paintwork off) and cotton wool blocking up holes where drafts pull the chimney smoke in.)

Where I get my Oxygen from: BOC Homecare (via prescription)

Where I bought my AusClimate Dehumidifier from: AusClimate online

Where I but my 3M Masks: AESSRA

Where I bought my InovaAir Purifier from: InovaAir online

Information on woodsmoke, rules for chimneys and Parliament Enquiries into the use of them: http://woodsmoke.3sc.net

Lung Association and Woodsmoke: Air Quality and Woodsmoke: http://lungfoundation.com.au/lung-health/air-quality-and-woodsmoke/

(image art by Michellina van Loder and Pixabay)

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

Ready for Curing CIRS: The No-Amylose Diet

This is the diet that was recommended by Shoemaker trained, Integrative Doctor and Mould Specialist, Dr Tania Ash, at Vitality Hub, whom I’ll be seeing for the 11 step treatment protocol. This diet is just while I’m recovering from and treating mould illness aka CIRS. It’s pretty easy for someone already living a vegan whole-food lifestyle; but at the same time, it’s unyielding in its approach to carb cutting. It’s similar to the Ketogenic Diet used to control Epilepsy in children; and it’s also reminiscent of the Atkins Diet.

They call it a low-carb diet but it includes all the types of foods usually on my plate: unlimited fruit (except bananas, which give me an LSD like reaction anyway, which, after making a 4 Banana and date smoothie one day and freaking out: holding onto the edges of my chair while suffering vertigo, actual spinning and nausea (I know! such a small quantity of bananas, right!?).

Low amylose diet: forbidden foods: bananas, cake, breads, gluten

Low amylose diet: forbidden foods: bananas, cake, breads, gluten

I nearly hit speed dial, asking FreeLee the Banana girl how the hell this could possibly happen? Ergo, I decided to check in with my Allergist and Immunologist, Dr Colin Little, about it instead. He said: “Bananas are a food just like any other. The body can develop an intolerance to just about anything.” I also temporarily (I hope) lose my sweet potato (bye bye chips!) and carrots—basically any vegetable that grows under the soil is gone—which takes me down to around 19 safe foods including heaps of vegetables and a few seeds. All grains and bread are gone, which means I lose my rice, which I had just become okay with. I’ve not been alright with cakes, biscuits or bread for years now. But we won’t go into that.

Not sure about Quinoa, will have to check this out.

If I wasn’t vegan I could have a heap of animal products like someone’s liver; but I’m not going there. I have started taking a protein powder suggested to me by the lovely Naturapath, Adrien at Vitality Hub. It’s called Amazonia. So surprised I’m okay with it because I’ve tried many protein powders from places like iHerb over the last 4 years of chronic illness and they were all a no go. I wouldn’t normally take a powdered food but since my choices are limited and cooking for myself is not always possible. I’m making this powder my friend! (I’d still rather some sweet potato chips.

Yes, I know! Deal with it. Be grateful for what is.

I’m also off all probiotics until I do the rest of my testing, which is next week. To keep this blog post shorter, I’ll leave this information about the minutea of navigating this part of the Labyrinth for another post.

This collection of foods and tips to do with the No-Amylose diet are from the Surviving Mould Illness website:

The No-Amylose Diet

If you have an elevated MMP9 level, it may be recommended that you follow a no-amylose diet to help bring this level down as part of your treatment program.  Many of us are familiar with the low-carbohydrate diets that are so popular today including Atkins and South Beach. While it might seem on the surface to be similar, the amylose-free diet is slightly different from this mainstream approach. Fresh fruit is actually encouraged, and the only fruit that is restricted is bananas. The goal of this diet is to avoid foods that contain amylose and glucose which in turn cause a rapid rise in blood sugar when ingested.  The diet is really fairly easy to follow and does not require you to count calories or measure portion sizes. You might even be surprised at the foods that are on the list of allowed foods for you to enjoy. While lima beans and butternut squash are full of starch, amylose isn’t one of them, and you are free to enjoy these starchy vegetables as often as you like.  For more detailed information on the diet including using it for weight loss, please see Lose the Weight You Hate by Dr. Shoemaker.

No-Amylilose Diet: Forbidden foods

  • Roots and tubers including white and sweet potatoes, beets, peanuts, carrots, and other vegetables that grow underground. The exception here is onions and garlic.
  • Bananas (the only forbidden fruit).
  • Wheat and wheat-based products including bread, pasta, cakes, and cookies.
  • Rice.
  • Oats.
  • Barley.
  • Rye.
  • Foods with added sugar, sucrose, corn syrup, or maltodextrin.

All these foods make be sick as a dog eating avocados and cannabis! (That stuff can made dogs extensively sick. Can even kill the spoilt pooches.) Except for the sweet potato which is making me so fukcen sad: my favourite meal, my go-to snack when I want to celebrate, self-soothe using food or just have a banging good lunch such as a huge bowl of sweet potato chips. Oh, well, will have to try and make them out of pumpkin or spaghetti squash!

One thing I’ve learnt about having this illness (whether it’s just CIRS or MCS as well (Which I’m thinking it’s not. Hey, LMFAO here, if people can self-diagnose themselves with MCS (which is not the way it should be Mr and Mrs Australian Government!), then I can undiagnose myself with it also (Hurry up an give us a code for MCS Australian Government!). So. I no longer have MCS. I just need to have the same accomodations and live the only prescribed and science-based treatment that actually works: Avoidance of Chemicals!

Allowed Foods

Allowed foods include basically anything that is not on the list of forbidden foods including:

  • Corn.
  • Onions.
  • Garlic.
  • All vegetables that grow above the ground including lettuce, tomatoes, beans of all types, peas, cucumbers, and celery.
  • All fruits except bananas.
  • Meat, fish, and poultry.
  • Condiments (avoid low-fat varieties as they usually contain added sugar).
  • Spices.
  • Eggs.
  • Dairy (avoid sugar-laden products).
  • Nuts.
  • Sunflower, pumpkin, and squash seeds.

This diet is based on the 00-2-3 rule and is an easy way for you to remember what should or should not be included in your diet each day. You should have 0 sugars (glucose or sucrose, including corn syrup), 0 amylose, 2 servings of protein that total at least 6 to 8 ounces, and 3 servings each of vegetables that grow above the ground and fruit (except bananas) per day. This diet allows for sufficient quantities of food so that you won’t be hungry and can actually enjoy good-tasting, high-quality meals. It just involves adjusting some of our habits and thought patterns when it comes to food. For instance, you can still eat a hamburger, just not the bun. Why not try some melted cheese and a hearty slice of tomato on top instead? Soups can be a nutritious and filling meal or snack but not when they are loaded with pasta, potatoes, or rice. Why not try some delicious black bean soup or maybe a homemade cream-based tomato soup without the added sugar so often found in canned varieties?

The other benefit of this diet is that it is also a gluten-free diet. The avoidance of wheat, oats, rye, and barley is the same for both diets. If you have also been advised to be on a gluten-free diet, no adjustments need to be made in order for you to eat gluten-free. Just follow the 0 amylose rule and you will automatically be avoiding gluten-containing products. One key difference to note is that this diet does not allow rice while gluten-free products often use rice as a substitute for wheat. This makes the no-amylose diet slightly more restrictive than a no-gluten diet.  For information on how to eat gluten-free, please visit this page.

More information on the No-Amylose diet, including recipes, can be found at the Surviving Mould Illness website.

My morning drink of wonder: Amazonia Protein Powder (I had the Raw Protein Isolate in vanilla flavour but was told to get plain; I just felt like living a tad hedonistic, living on the wild side like I often do feel.) and after buying a 500 gm

I also use Xylitol. (I haven’t checked with Dr Tania Ash or her Nutritionist if this is okay but I’ve used it for years; I find it doesn’t make my skin itch the same way sugar does, if at all. It’s so easy to eat a clean diet when store bought junk-food and all sugar-based products impact on your health. (Pity it took such a disaster of mass-proportions to stomp my health into dust for me to embrace this lifestyle.) This brand here, as I find it the cheapest.

I’m thinking of opening a shop on The Labyrinth and selling things like Foil Flooring, Zeolite and Xylitol. Let me know down in comments below if you think this might be of benefit to you.

Would you like a tour of the ‘Build an Eco-Friendly, Building Biology-ed, Allergy-Free House‘ project

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

Information, products and views presented by guest bloggers @The Labyrinth are not necessarily the same as those held by this blog's author, Michellina van Loder. Reviews are my own personal opinions (unless stated otherwise); and satire is used throughout personal posts. Any health topics discussed are not to be taken as medical advice. Seek out medical attention if needed and do your own research; however, you're welcome to use mine as a start.
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