Dry Eyes

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One of the first symptoms to impact on the quality of my life was chronically dry eyes. Whenever I spritzed on my favourite perfume (one of them, at the time being), Elizabeth Arden’s ‘Green Tea’, my eyes would sting, giving me the sensation of the perfume being in them: it’s a sticky feeling where the lids feel like there’s something gritty underneath them. They’d sting, and rubbing them just made them worse. Then the dryness started.

At first it was only with my own fragrances but later, after naturally stoping their use, it would happen at the supermarket while standing in line at the checkout, and I’d realise that I could smell someone else’s perfume or aftershave at the time. The more I sniffed, the worse it got; therefore, it seemed like it was the ‘smell’ rather than the ‘chemical components’ or ‘scent’ that were impacting on my eyes. This gave way to the seemingly ridiculous term: “Smells hurt my eyes.” Some doctors raised their eyebrows at that one, while others turned their head a little too quickly when I expressed that medical complaint to them. But once the swelling and inflammation started, it was obviously and allergy, as I was told. Now, that made sense.

It wasn’t until after undergoing testing with an allergist and immunologist that I found out that it was the musk and rose (artificial) based ones that were the worst for me. Sure, inhaling the scent while smelling it was a problem; but even with a cold and a blocked nose, and breathing through my mouth, the exact same thing would happen. Giving up my perfumes upset me but just the idea of finding relief from these symptoms was enough to make me throw them out. Essential oils: Ditto. (Later (by five years!), as I recovered, I found that truly un-violated plant based oils were something I could incorporate into my beauty routine: Rose-hip oil, Rose Geranium, Sandalwood; these were all stars in my spa bath and personal care products (mostly Akin by Alchemy: also products used by many people with chemical sensitivities).)

For a while there, being told that my condition was an allergy did my head in. That is, until I moved to live near the ocean; then it was pure freedom from the psychological aspect of this condition. You see, with an allergy, it’s just plain logic that a person would be able to discover the source, eliminate it from their lives, or try to avoid it all together. (Like cats, or pollen.) Yes? But no, it seemed that I was on a never ending journey, entering into a Labyrinth of hell: a place of frustrating strangeness. Until I moved, it became so bad that after exposures to airborne fragrances, my eyes would sting, swell and dry out to the point of such pain, I just didn’t know what to do. Even crying stung my tear ducts with sharp needle-like pain as the tears welled up: pain that’s severe enough to stop a person from crying (a strange place to be at!). And the lack of an explanation for my symptoms just made the whole experience worse: I blogged about the doctor who, unkindly and unethically, made the psychological aspect of this medical condition worse. However, another awesome specialist suggested the use of artificial tears. These have no preservatives and come in a handy single use packet: Bion Tears. Not kind to the environment by pure gold for sore, dry eyes!

Some nights, I’d wake up and, painfully, my eyelids would be stuck to my eyeballs. Excruciating! Opening my eyes felt as if there were dried paper stuck to them and just the tiny movement of moving the lids, made it feel as though the paper was being ripped off of them. It got to the point where I’d sleep with the drops under the pillow, scrambling for them on awaking. I wore dark glasses and a hat to go outside; and I avoided sunlight like a character in a modern day vampire television series.

An Eye specialist, Dr J Doug Roydhouse at Vision Eye Institute, an Eye Clinic at Footscray, Victoria, Australia, whose area of expertise was General, Cataract and Medical Retinas, did a test call a Schirmer tear test, as requested by my specialist, Dr Colin Little. The test: 0 ml in 5 ml for the left, and 0 ml in 5 ml for the right. The specialist explained that tears are made up of water, mucuus and thiner water and mucous layer. He couldn’t be specific about which part was missing but he could say that my eyes were overly dry. Menapause was mentioned—I was 33—and the term Sjögren’s syndrome was also bandied about. The doctor had on a shit load of aftershave, too! (I remember back then, the idea of asking someone to go fragrance free had me shaking in my shoes: What if I offended them? What if they said no? What if I made a nuisance of myself? What if I couldn’t access healthcare at all? No wonder, I went a bit strange finding my feet on this scented rocky terrain scattered with peoples’ sensibilities… )

You can read more about that test here. And here is some information on Sjogren’s Syndrome, which, thankfully, I don’t have:

Sjogren’s syndrome – Better Health Channel

Sjögren’s syndrome is an autoimmune disease that mainly affects the eyes and salivary glands, but can affect different parts of the body. Symptoms include dry and itchy eyes, a dry mouth, thirst and swallowing difficulties. Although there is no cure, proper treatment should provide comfort and relief.

I have all these symptoms and more when exposed to fragrances. The dryness has an impact on my whole body though: skin, bowels, everything.

After Sjögren’s was ruled out, along with other related disorders such as Lupus, my doctor measured my hormone levels and tested me for fragrances. Well that was a horrible test and not one that I would happily repeat: sneezing my brains out, coughing and flushing for fifteen minutes surprised me. However, the good doctor wasn’t surprised: the other tests were just a matter of elimination. In fact, he had other patients with similar symptoms and recommend that I do what they had done. Move. Avoid Fragrance. Create a clean living space. He also printed out this study and gave it to me. Now, I’d like to share it with you.

Here is the gist of it:

“The majority of dry eye symptoms are due to a chronic inflammation of the lacrimal functional unit resulting in a loss of tear film integrity and normal function. This leads to a reduction in the ability of the ocular surface to respond to environmental challenges. The underlying cause of tear film dysfunction is the alteration of tear aqueous, mucin, and lipid components. This may result from a systemic autoimmune disease or a local autoimmune event. A lack of systemic androgen support to the lacrimal gland has been shown to be a facilitative factor in the initiation of this type of pathophysiology. Tear secretion is controlled by the lacrimal functional unit consisting of the ocular surface (cornea, conjunctiva, accessory lacrimal glands, and meibomian glands), the main lacrimal gland and the interconnecting innervation. If any portion of this functional unit is compromised, lacrimal gland support to the ocular surface is impeded. Factors such as neurogenic inflammation and T cell involvement in the disease pathogenesis as well as newly developed animal models of ocular surface inflammation are discussed.”

Click here to read the rest.

(Note: Before the testing for fragrance showed what the problem was, another Eye Specialist, suggested that I have silicone plugs inserted into my tear ducts to stop my eyes drying out. In theory, this works by stopping any existing tears from draining away. It was an experimental technique at the time: ten years ago. I passed up on that; it felt wrong to address just that area without finding the cause. A search has shown that this idea has taken off: they are called Punctum Plugs for Punctal Occlusion; it shows there is a use for it somewhere. But in my case, who would think that avoiding the chemicals in fragrances could be the answer?)
How does inhaling fragrance chemicals effect you or someone you know? Are some worse than others? What about essential oils, does anyone find these less problematic?

Michellina Van Loder is a Professional Writer, Journalist and Blogger. This is where she shares her tales about trail blazing her way out of the Labyrinth of Chemical Sensitivities and Mould. This is also where you will find the latest Research on related topics.

About Michellina van Loder

Comments

  1. Wow! I have experienced eye irritation with chemicals but not to the extent you have.

    • Michellina Van Loder says:

      It’s actually much better now, which goes to show that when it does happen either exposures are way to high or my immune system is way to low (or both)!

  2. Great information. MCS has so many symptoms that sometimes we just live with something not making the connection. It wouldn’t surprise me if those episodes I have of burning, tearing, feel like you have sand in your eyes are related to a trigger.

    • Michellina Van Loder says:

      I think eye symptoms are a common one with chemicals. I say this because on the Material and Safety Data sheets for the safety and management of chemicals, eye irritation often is listed. Although, it may be more common to have watery eyes rather than dry eyes.

  3. Hi Michellina,
    I suffer all the time from sore swollen eyes/eyelids due to chemical fragrances/artificial scents. I cannot breathe near them, and even if they waft across towards me from a distance.
    it is a nightmare which should not be. The government body NICNAS does not even know what chemicals are behind the word “fragrance” on a label. I am at present discussing this issue with them.
    I am so tired of the abuse which is unleashed on MCS sufferers and others with this type of disability. The air is our human right to breath, yet it is fouled by noxious pollution. Diesel particulates and exhaust emissions are carcinogenic and troubling enough, without this toxic onslaught of what are called personal care products. There is nothing personally careing about a bottle tube or jar, or can full of toxic chemicals which invade everyone’s airyways, regardless of if they choose to be breathing it or not. It is toxic trespass, and harmful, yet NICNAS passes products for sale without even knowing which chemicals are in them. I mean Airwick for example is toxic and they know what is in it, and still pass it. The old laws have to change, people are being injured by these chemicals.
    I have had cause to pursue this with NICNAS as a mechanic sprayed a $6.95 product into my car when he was asked and told not to use any fragranced or scented products. he was told why etc, and yet he sprayed this noxious car Kolone by CRC. I have had to get rid of the car as we all could not wash and clean the toxic particulates out. It also caused me a bout of pneumonia, and many other health issues and distress.
    NICNAS emails have been going back and forth for 3 months now btw it was 10 weeks of trying to clean this vehicle back to the way I had it, which was fragrance free.
    Nicnas have still not supplied me with the names of the chemicals which the product was made from. I did see some ingredients online when the toxic event first occurred, unfortunately I didn’t save that page , and it disappeared. Wonder why? I know that another page only stated “fragrance” as part of the noxious hazardous cocktail, and that is what Nicnas referred me to. But I continued to request the names of the ingredients used, and they have not been forthcoming. i know it is because they do not have the name of the ingredients used, and yet this government body passed the request by that company for them to make a product for sale. These chemicals have not been tested, and we all know they are hazardous and unsafe for humans to be breathing and absorbing.
    My eyes swelled up as i tried to clean the car with a Sundstrum mask on, and I had to use Tears a natural eye drop, preservative free to stop my eyes infecting.
    Too much is just allowed to be sold without proper care for the health impact.
    I use Alchemy& A’Kin products and also BE Essential oilswith no problems, as these products are pure and 100% what they state they are.
    Sorry for long comment. We need to all stand together, so we are able to breath again in a cleaner world which would benefit everyone. But greed shadows the eyes and minds of our society/governments. MCS is becoming more prevalent and we all know why, but people are refusing to listen and heed. Who will be next? Sadly.

    • That’s great that you can tolerate essential oils, but it should be noted that they also contain VOC’s. It doesn’t make any difference if they’re organic or not.

      • Michellina van Loder says:

        Hey, yes it was good that I could use Alchemy products with essential oils in them, that was during my recovery in 2009. Since my health went downhill, I can’t use those products at all; only the unscented versions. And in the whole ten years that I’ve had MCS, I’ve never been able to burn or use them neat. However, at the same time, if I do have symptoms (from an exposure to someone else’s) they would be nowhere near as bad as with the solvents in other products. I think the organic-ness of them might make a difference to whether they have artificial ‘ingredients’ or not. I’ve seen some with pretend rose, which smells like rose but effects me the same as a Glade plug-in (FED). I agree, they have VOC’s, and can be just as bad as fragrance for some people :)

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Information, products and views presented by guest bloggers @The Labyrinth are not necessarily the same as those held by this blog's author, Michellina van Loder. Reviews are my own personal opinions (unless stated otherwise); and satire is used throughout personal posts. Any health topics discussed are not to be taken as medical advice. Seek out medical attention if needed and do your own research; however, you're welcome to use mine as a start.
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